Patient and Carer Stories

My Beautiful Pineapple

by Fiona Edwards Up until 2014, I had never heard of Inflammatory Breast Cancer (IBC).  That all changed one October evening.  I was on skype to my best friend Marianne when she delivered the news that she had IBC and was gearing up to have a mastectomy. Hot tears filled my eyes and my mind darted to the worst-case scenario. I felt sick.  I couldn’t even start to imagine how she felt. I first met Marianne at university in Scotland in late 1999 through a mutual friend and we quickly bonded over...

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Men Can Get IBC Too – Rod, QLD

IBC is not a common diagnosis for women, but almost unheard of in men. Five years ago, after feeling a lump, I was diagnosed with Invasive Ductal Carcinoma with dermal lymphatic invasion, Stage IIIB, Grade 2, ER+/PR+, HER2-, and referred to a breast surgeon. On examining my inflamed and enlarged left breast, with its inverted nipple, the surgeon determined an IBC diagnosis and an inability to operated on the left breast in that condition. She sent me to the oncologist to start neo-adjuvant...

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