Patient Resources

Patient resources in Australia are limited. We are sharing with you the official government statement and we hope to soon be sharing more in depth information as it becomes available.

Australian Government Cancer Treatment options for inflammatory breast cancer.

For support if diagnosed, please request to join our Facebook page.

We are sharing the leading US research out of the Morgan Welch Inflammatory Breast Cancer clinic housed at MD Anderson Cancer centre in Houston TX. They are the leading resource in the world for IBC and we would like you to be aware of these papers.

There will be some differences between terminology as well as some availability of medications.

These three manuscripts are from the Morgan Welch Program’s 10th Anniversary conference have been published in the Journal of Cancer. Thank you to all authors for their hard work in writing up these important papers which will serve as key references for the coming years in the field. The links to the papers, all open-access are below for your reading.

First paper

Ueno NT, Espinosa Fernandez JR, Cristofanilli M, Overmoyer B, Rea D, Berdichevski F, El-Shinawi M, Bellon J, Le-Petross HT, Lucci A, Babiera G, DeSnyder SM, Teshome M, Chang E, Lim B, Krishnamurthy S, Stauder MC, Parmar S, Mohamed MM, Alexander A, Valero V, Woodward WA. International Consensus on the Clinical Management of Inflammatory Breast Cancer from the Morgan Welch Inflammatory Breast Cancer Research Program 10th Anniversary Conference. J Cancer 2018; 9(8):1437-1447. doi:10.7150/jca.23969. Available from http://www.jcancer.org/v09p1437.htm

(**We especially wish to highlight this paper because its builds on the previously published version of the guidelines published in 2011)

Second paper

Woodward WA, Cristofanilli M, Merajver SD, Van Laere S, Pusztai L, Bertucci F, Berditchevski F, Polyak K, Overmoyer B, Devi GR, Sterneck E, Schneider R, Debeb BG, Wang X, van Golen KL, El-Zein R, Rahal OM, Alexander A, Reuben JM, Krishnamurthy S, Lucci A, Ueno NT. Scientific Summary from the Morgan Welch MD Anderson Cancer Center Inflammatory Breast Cancer (IBC) Program 10th Anniversary Conference. J Cancer 2017; 8(17):3607-3614. doi:10.7150/jca.21200. Available from http://www.jcancer.org/v08p3607.htm

This paper is more of a scientific summary of ongoing research in IBC and where we will be going in the coming few years.

Third paper

Alexander A, Arnold TL, Bishnoi S, Ballinger C, Shaitelman SF, Schaverien MV, Cohen L, Dev M, Ueno NT. Survivorship and Advocacy in Inflammatory Breast Cancer. J Cancer 2018; 9(8):1430-1436. doi:10.7150/jca.21281. Available from http://www.jcancer.org/v09p1430.htm

This is the first manuscript describing anything related to IBC advocacy and survivorship. Given the improvements in outcomes with better systemic and locoregional treatments, we feel it is time to more carefully consider these unique needs in our routine care of IBC patients.